Monday, May 12, 2014

A special announcement is coming this week at the HXRefactored Conference, the launch of a new non-profit called Patient Voice Institute.  I'm hoping this can be the group that finally gives patient advocates a chance to work together to amplify their voices and influence the healthcare system.

From the website:

The Patient Voice Institute (PVI) is dedicated to the support, advancement and inclusion of the Patient Voice in Health Care. What are “Patient Voices”? Experienced, passionate, informative speakers, presenters, educators and collaborators who provide compelling cases for what patients need from the system, and how to achieve it.

What PVI Does:
  • PVI works with patient organizations and individuals to amplify the patient voice in ways that are comprehensive, consistent and true; developed by, with and for people who are patients, family members and consumers.
  • PVI creates connections across patient groups, patients and families, and health care organizations, associations and others to support all sides in developing true partnerships.
  • PVI provides evidence-based principles that reflect what patients want and need, training and matchmaking for patients and organizations who want to work together, and online promotion programs to encourage patient engagement in the policy direction, operations, and daily interactions of health care.
Led by a terrific team, this could be just what the movement needs.


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